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Inspiring Art

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Dr. Francis Collins and Patricia Weltin unveil a portrait of a little girl with a rare disease
On Rare Disease Day 2019, I got to join Patricia Weltin, founder of Beyond the Diagnosis, Pawtucket. RI, to unveil this portrait of Amber. She was born with the rare Giant Axonal Neuropathy. This portrait was part of a larger exhibit, sponsored by Beyond the Diagnosis, that features kids and young adults with genetic disorders and other rare diseases. Each portrait was beautiful and inspiring in portraying the reality of these kids. That is, none are defined by their diagnoses. All have a beauty in every sense of the word. The unveiling was held at NIH on February 28. Credit: NIH

Meeting with the Edge of Rock Band U2

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The Edge from U2 and Francis Collins

David Howell Evans (left), better known as the Edge and lead guitar player in the rock band U2, is a strong supporter of cancer research. The band was in town on June 18, 2018 for a concert in Washington’s Capital One Arena, and the Edge once again invited some courageous young cancer patients receiving treatment at NIH and their parents to come out and enjoy the show. Here, I get to thank the Edge for his generosity and for giving these kids such a special thrill.
Credit: Diane Baker