Posted on March 19th, 2019 by Bob Kuska
Posted In: Director's Album - Photos, Uncategorized
Tags: art, Beyond the Diagnosis, giant axonal neuropathy, Patricia Weltin, Rare Disease Day
I hope this not supported by diversion of funds from improving diagnosis, treatment. I want failures redressed ASAP by productive medical investigation. Isn’t that the NIH’s mission? What Congress has appropriated the NIH our tax dollars for? Not PR spectacles.
Thanks for your comment.Beyond the Diagnosis is a non-profit organization. According to its website, all funding to support the Beyond the Diagnosis art exhibit comes from corporate or private patrons.
I’ve had the honor of viewing this exhibit at the Broad Institute while I was visiting the MIT campus to discuss our daughter’s rare disease with researchers. The portraits not only show each person’s beauty, they connect a living person to each rare disorder. These portraits have been exhibited in numerous research institutions where they inspire the people who carry out the work required to understand disease pathology, identify treatment targets and translate research into treatment.
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Kendall Morgan, Ph.D.
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